Monday, April 30, 2012

8 days to go


It is now only 8 days until my last Chemo session and 9 till my last radiation.   

I'm planning a party to celebrate on the weekend following the end of the treatment.  While it may be a self-serving excuse for a party, I think getting through the treatments deserves some special celebration.

Within two weeks after the end of treatment I shall be scheduled for a battery of follow-up  scans, and then onwards into surgery!  Excelsior!

The last week has been a little rough as the combined effects of treatment take their toll.  It occurred to me that my current pharmacology assortment is actually designed to treat me for the effects of chemo as opposed to actually being anti-cancer.  It's a sobering reflection on the toxicity and efficacy of the treatment itself. 

Chemo is essentially applied poison directed at the cancer: the trick is to do more damage to the cancer than to healthy cells, i.e. me.  

I once wrote I was eager to feel the "damage" being done to the cancer.  I can now say I'm achieving success in that regard.  The moral of that is to be careful what you wish for.

With all that said, however, I will add that I'm doing very well so long as I remember to keep on top of my meds.  

I'll type more tomorrow after I return from chemo.  

Here's a photo of my current drugs.  
 

Thursday, April 26, 2012

Misadventure, video, and unexpected grace.


Today was a day of misadventure, covert video, and unexpected grace.

I decided to get some video of my radiation treatment and smuggled my camera into the therapy session. As I reported earlier this week, the staff often plays music during the procedure and I wanted to show my blog readers what it was like when a certain song started playing. The loud "buzz" sounds you hear are the actual radiation emitters, and as I also said earlier in my blog, there's a static electric charge that plays ticklish over my chest hair as it zaps me. The radiation itself is starting to really do its job, and I'm glad there's at last some pain to feel that I'm doing some damage back at the cancer.
Here's my video.

 But my adventure today didn't end with my video. I was hustling to reach my appointment in time and had thought my jeep would have enough gas to skip refueling until afterwards. I was wrong. Jenny (that's my jeep's name) got me to the appointment in time, but alas she must have been running on fumes because I returned to discover her gas tank as empty as I felt. So there was in inevitable calling of friends, then approaching strangers to borrow a gas can, and then a walk to a gas station, return with a gallon, drive to gas station, drive to return the gas can, and then home to rest.

But something happened this morning that transformed everything.

When I arrived at my appointment I discovered the same volunteer playing piano who had been playing last week. It turns out he does this every Thursday. I decided to catch a bit of his performance on video, and accidentally got an exchange between a little girl present for her treatment along with her brother. Both looked to be around 8 or 9 years old.

 If you listen you can hear the brother talking about his sister. This little girl has an amazing brother, and although you can't see them in the video (just listen for their voices), he had shaved his head to help show support for his sister. That children should have to endure this ... it tests every foundation of faith from every perspective. At least it does mine. Those kids are the real heroes in this battle, and I found myself praying for them. The agnostic in me had no choice.

I got the volunteer to talk a bit during a break. He is doing something amazing just by being there and playing his music. There is grace and transcendence in music. I wish I could express it better.

A Very Special Piano Man

Wednesday, April 25, 2012

Phantom Tastes and Surreal Moments in Radiation

My apologies for the delay in updating. Last week was extremely hectic due to A: preparing for two mysteries performed over the weekend, and B: the mid-way point in Chemo and Radiation have begun to really kick in. My blood work from today indicates a drop in protein so I'm focusing on that. I'm including a scan of this week's lab work compared to last week's, and while most of the numbers are holding good, there is room for a little improvement.

Regarding chemotherapy, my doctors assure me these next two weeks will be the hardest, to which I say, "bring it on!"  No matter how bad it feels for me, I know it's worse for the cancer, and the one thing I dearly love is the idea of hurting it back.  Does this make me a masochist or a sadist?

Keeping a healthy diet is getting difficult.  I have no appetite.  I have no sense of taste or smell due to chemo, or when I do, it's distorted.   Throughout my life I've enjoyed a very keen sense of taste and smell.  These senses have often been more valuable to me than sight and hearing for picking up subliminal cues and details.  Now everything tastes and smells weird, or not at all.  Everything is blandly neutral or repulsive, or worst, a mixture of metallic flavors mixed with chemical smells.  So I am now treating food and drink as medicine, setting aside specific amounts to be consumed on a time-table like prescriptions. I can taste extreme spices like cayenne peppers, but I avoid these due to a possible reoccurrence of the acid reflux potential which caused the cancer in the first place.  I'm normally a very taste / scent oriented person but this is like I'm hallucinating with my mouth and nose.  Phantom odors and chemical tastes are a surreal experience I can't quite describe adequately. 

Swallowing in general has become painful and difficult.  The radiation is burning away at the cancer inside my esophagus, which is most excellent, but it is also doing collateral damage to the surrounding tissue.  This has made my voice raspy and induces great pain whenever I take a deep breath or attempt to swallow.  Even swallowing a sip of liquid  is becoming a painful act of will.  I find myself increasingly reliant on pain medication.  My brain hates this reliance.  When using the pain meds I feel mentally dulled, slowed down, distracted.   So I find myself avoiding the pain meds until absolutely necessary.  It's a trade-off I'm willing to make.  For now.

Today's radiation therapy provided a very surreal moment all on its own.  The attending staff generally play music over the speakers as the giant mechanical donut machine zaps away at the cancer.  This can be relaxing and helpful while laying motionless as the machine rotates around you.
Today it took such a surreal turn that I almost fell laughing off the table.

To give you a better visual idea of the machine and process, see attached image below.  

The process is simple: I am placed shirtless on a narrow table with bars, and my head is fitted against a molded-depression as my arms are raised above my head to grip a steel bar above me.

The lights go down, laser guide-lines are projected against the crosses and ex.'s on my torso, and the Giant Mechanical Donut dances around me zapping radiation into my chest.

Well, if that isn't surreal enough, today's musical choice was a Johnny Cash Medley, including "Burning Ring of Fire."

I was deeply amused.

Please note these are stock images  used in this image, but this is the EXACT model series of the machine used in my treatments and are identical to what I experience every weekday.  They don't allow cameras in the actual radiation room so I pulled these images from the machine manufacturer's web page and other image sources.   The last two reflects more reflect my twisted imagination as to what they may actually be doing in the control booth and the unbridled affects of any unforseen radiation mutations.  :)




Wednesday, April 18, 2012

Wednesday Update


Third week of chemo and radiation and so far so good!  There have been some minor problems with pain but the new meds are doing wonders.  

I obtained a copy of my new blood tests Tuesday to compare with my test results from when I started chemo and am including a scan of them below.  Overall I am maintaining excellent levels and keeping my weight steady.  Go Todd Squad!

I've been working hard on my nutrition and lifestyle, and most importantly on me.  I've come to see  this is an opportunity for rebirth.  The first half of my life was been filled with so many mistakes, regrets, self-destructive and childish things.  This cancer represents change inexorable and inevitable.  I may not be able to control the inevitable.  The end comes for us all eventually,  But I am able to define me, and this I can do.

 I am determined to use this as a rebirth, a phoenix metaphor if I may.  Getting through the surgery is only the beginning.  There will be monthly tests at first, then sporadic as I begin the 5-year process to reach a quantified "cured".   

The changes I've been making are only the beginning of an entirely new lifestyle.  Better choices, a different perspective.  This is the start of the second half of my life, however long that may be, and it is a chance for me to try to be a better person in every way I can control.  This cancer is trying to kill the old me.  Let it.  That me was messed up in so many ways, a life of mistakes and bad decisions and good intentions failed..... Whatever "me" that emerges from this, however successful I am in fighting the cancer, the "me" that is to come is going to be a different me, and I'm embracing that in so many positive ways.  I may not be able to atone for my past mistakes, but I'm determined not to repeat them.  I may make all new mistakes, but they will be made from a better place, a different perspective.

 I'm visualizing this as a sort of birthing process, to become a better person.  This is my goal and the way of life I'm trying to live.  As I just told a very dear friend of mine, I intend to take the best part of me and distill it into a better future me, and the future is now.



Musical mood today



Tuesday, April 17, 2012

New prostate cancer treatment gives 'perfect results' for 9 in 10 men

New treatment for prostate cancer gives 'perfect results' for nine in ten men: research
A new treatment for prostate cancer can rid the disease from nine in ten men without debilitating side effects, a study has found, leading to new hope for tens of thousands of men.

Click here for the whole story