Sunday Update
I've been amazed how quickly the radiation and chemo have
become a routine occurrence and focus of my days . Monday through Friday mornings I report in at
9:00 for radiation and Tuesdays are devoted to Chemo. I've become a first-name basis regular at
each office and am known as a scourge on the lollipop baskets. I have developed a fondness for raspberry
suckers.
Meanwhile my health has not been super great. The radiation is doing its job at burning
away at the cancer and as a result there's a bit of collateral pain growing in
the surrounding esophagus.
Swallowing is
becoming increasingly harder, even just for normal liquids, and breathing is
becoming more difficult. Chemo
side-effects have started to catch up with me with cramps and nausea, but the
oddest effects have been sensory.
Everything now tastes like chalk to me and everything smells different,
sour. My mouth is constantly dry and
sticky at the same time and it's as if I've been sucking on persimmons.
It's basically an adventure in re-adjustment to the way my
body handles the drugs and treatment.
One interesting aspect has been coming to terms with the
radiation treatment itself. I've noticed
a very subtle sensation at each treatment that I hadn't expected. As the radiation machine rotates around me
and the beam zaps at my chest from different angles, there is a ripple-like
wave sensation through my chest hair like a soft electric breeze. The sensation is oddly pleasant. I imagine the instrument as the machine sings
some radioactive melody to the cancer.
Meanwhile I've been juggling things on a personal front fairly
well. Rent this month is paid and there
is chocolate milk in the fridge and protein shake supplies in the pantry. I'm online and there is the chance for a
couple of design gigs that may help with the financial situation. I received a letter Saturday that there is
some sort of problem with the medical billing situation but won't know details until
I can call them tomorrow.
Towards the end of this week I did take the initiative to radically
shorten my hair. I haven't started
experiencing any hair loss yet from the chemo but wanted to take some kind of
control over the situation before that happened. My basic fear was to start losing it
massively at a point when I may not be psychologically at my best, and rather
than set myself up for that I decided to preemptively "cut my
losses". I didn't go for the full
"shave" (yet), but am close enough so that my scalp can get some sun but
at the same time prepared for the ultimate option if I chose to fully shave my
head.
I've been thinking a lot about how much I've been changing my life, my hopes for the future, my fears about everything..... I'm not sure I can really write about any of that yet.
I have an odd day planned today with a friend that involves
seeing the film "Cabin in the Woods" followed by some serious
Buddhist discussion and meditation.
Life is full of metaphors but they are only where you are
prepared to find them.
So handsome Todd! Reminds me kind of like Jim Belushi in the Blues Brothers! Have a good day, I'm thinking about you always. Love you, Suzy
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